Friday, June 19, 2015

Enough is Enough

My son's friend joined us for lunch today. As he sat in my kitchen eating my food, he explained that he didn't like "white people". He almost fell over when I told him my father was a blue-eyed blond with white skin. I have "white people" in me I explained to him. My son and I have done much for this young man and have not once been unkind to him.

I have been hated often because of my appearance. As a little girl, a boy peed on me and pushed me down the stairs because he thought my mother and I were Vietnamese. My mother looks Vietnamese and back in the early 1970s, this was not a good thing.

When Isaiah was about five, the boys and I passed through the town of George West. This was my first experience with racism that caused me to feel deeply afraid. We stopped at a DQ there and it was obvious that the people inside had issues with my beautiful brown baby.

At the school where I work, an Ethiopian couple stopped me in the parking lot telling me that Isaiah could not be my child. They told me he looked Ethiopian and was like them. An eight-year-old Isaiah stood next to me afraid as I tried to free us from their cruel words.

After Alex and Isaiah's father passed, his family announced that Alex could have never been their relative because of his skin color. They later tried to cover their racism by making things up about me personally but revealed their heart by saying Isaiah who is "mixed" could not have been his either. My current husband's family has made similar comments wondering why people can't just marry within their race. Again, saying things about me that are not true to hide their racism. 

I have two children. One is "white" and the other "black" and I see no difference in them whatsoever. I said as much to the young man whose painful experiences with someone white has birthed hatred in him. I hope our conversation over lunch changes his heart.

I could use the same excuse because some black people have been evil towards me. But what would I do about the countless other black people who have been my friends, who have extended kindness towards me? 

All of us have a story to tell about someone judging us because of our appearance.  All of us have experienced either racism, sexism, prejudice, or cruelty in one form or fashion. Enough is enough. Must an entire race pay for the mistakes of some wounded or wicked people?

Wednesday, February 25, 2015

A Letter to Alex's Friends

A letter to Alex's friends,

Alexander came into this world on a cold rainy day peeing on the nurse and then the doctor. He didn't require the customary swat on the butt because he started screaming the second he was born. His pediatrician, Dr. Worrell, commented that Alex's muscles were unusually developed and that he had never seen anything like that. Alex was able to focus on objects in a room and hold a rattle in his hand from the beginning. Babies normally do not have that kind of control and strength.

At age 3, we switched to another pediatrician who was closer. Dr. Douglass spent the longest time with Alex again saying he was surprised by his strength, coordination, and muscle development at that age. This doctor called my son "Bam Bam" from the start.

I have an illness called post-polio syndrome. This means my legs do not work the way they should and I get tired and disoriented easily. Alexander learned how to drive at a very young age because there are times I cannot.

He also learned how to mow the grass at age six because I couldn't do it and my husband was very busy. Alex picked up the pieces wherever he could. He even taught his little brother to walk and speak when the doctors said he would be delayed. Most children's first word are mama or daddy, but Isaiah's first word was "Alex".

When Alex's dad started to become abusive towards him, he took it for as long as he could. Then finally he stood up to the 6'2" man and said you aren't angry with me because I haven't done anything wrong. He loved this man very much, but still wears the scars of that abuse. 

In school, he was tested and told he was "gifted and talented" and his IQ results qualified him to be considered a genius. In the first grade, the teacher let Alex teach the math class because Alex was already able to do simple algebra! He sailed through school until his diabetes started causing him to miss days. The school wasn't interested in making up the knowledge he missed. They just excused the work and passed him. He fell further and further behind. The boy who wanted to be a doctor more than anything could barely keep up. He started to hate school and hate the teachers who didn't understand his illness. He wears the scars of those days as well. The smartest man I know worries he will not succeed in college.

Alex looks so healthy but a common cold has put him in the hospital for days. Someone breathing smoke on him has turned into pneumonia. Alex has almost lost his leg more times than I can count. His diabetes makes his bones brittle, his lungs scarred, his body impossible to heal, and makes him susceptible to illness. His autoimmune condition has attacked his pancreas and thyroid and continues to reek havoc.

Despite everything Alex faces he continues to challenge himself as an athlete and a Christian. He wants his friends to know God because he cares. This makes him the brunt of your ridicule. So many times he gives up and just goes along with the foolishness of the day.

At age 19, he would love to go away to college. However, there have been days when Alex would have died in the night had it not been because Isaiah and I sensed something wrong and woke him up to realize he was in a diabetic crisis. Isaiah "feels" when his brother is sick in his sleep. He would love to get an apartment and live on his own. But, how would he afford the $700-1000 a month required above what insurance pays?? As you make fun of him, are you offering to help pay the medical bills?

Alex has buried two fathers and the only thing these men left him was a mess to clean up. I have been the only parent that has ever paid the children's medical bills.... Ever. Alex sees what I have to do to manage and knows he couldn't take over this challenge for himself.

He is thankful for the memories but wonders why his dads didn't love him enough to make sure he was taken care of. Both men told him they had planned for their deaths. He feels lied to and deceived and yet misses them both. He wonders why God has placed the burden of his little brother on him. But he is willing as he tells his brother it's time to go to bed or to stop disobeying his mother. When his brother's illness makes his perception inaccurate, Alex is quick to help him see truth.

He sees me working as hard as I can to make ends meet. He feels guilty that I haven't had a professional haircut in over five years and that my clothes are bought at thrift stores. He holds off on buying clothing or getting his own haircut as long as he can. He tells me he hates to be a burden. The truth is I couldn't take care of us without Alex.

Sometimes he comes home sad that his friends have called him names. Alex refuses to smoke, chew your tobacco, or drink your beer because he knows he has to take care of his health as much as he can. He doesn't pursue those women who so easily give up all they have because he knows catching something, anything, could mean death to him. He possesses a strength you will never know. You see him as weak but the truth is it requires great restraint for him not to give in and not to fight back. Alex is still ridiculously strong. I have seen what happens when he finally decides to fight back against a bully twice his size. Many of his friends would warn you not to push Alex so hard. I pray he never decides to fight back against you- for your sake. I pray that you would learn to be a true friend. Stop encouraging him to do things that might damage his truck or his life. Don't ask for what little money he has. The money you use to feed your face might be money we need to purchase life saving insulin.

Alex doesn't rush home when I call because he is weak. He could easily do what he wants. He is a grown man. A grown man with a mother that not only has post-polio but a heart condition and a brother with more medical issues than I can list. He rushes home because he knows I need help and he knows he has to get home to take the night insulin that keeps him alive!

It must make you feel like a big man to make fun of my son. You just have no idea that my son possesses more strength than you will ever understand. So keep making fun of him if you will. But remember his name because while you are still drinking yourself to death or chasing skirts, Alex will continue to do great things despite you, despite his illness, and despite all the other challenges he faces.

Friday, January 9, 2015

Heavy Heart

My heart is heavy today. The last nine days have been the most difficult in my life. My oldest son keeps asking me when we can go get his dad’s clothing from his apartment. He wants a shirt that smells like his dad. He says he wants nothing else from the apartment just a shirt. The little one just keeps saying his dad’s place was his house. He had a key to the place before the property manager changed the locks. Ken had a key to our house as well. It is still on his key chain in his apartment! I called the Williamson county courthouse today to ask about being let into the apartment only to learn that a petition had already been filed and my children not mentioned. I didn't believe it at first. I couldn't believe such evil could be done. Even when the document was emailed to me I was still in utter dismay. Ken's family is saying that Ken didn't have any children! My oldest son keeps telling me that it is the "Christians" that are evil in this world. No, Alex, it isn't the Christians that are evil. Not everyone that wears that title knows Jesus. Greed, sadness, anger, and other emotions make even Jesus people behave in ways that are not common to them. I have been guilty of it myself. 

I used to think that social media was not the place for certain personal matters. That goes back to the way I was raised. Shhhh! We don't tell. We keep things a secret. I no longer feel that way.

What venue is the place to request prayer for an injustice committed against a ten-year-year old child? The nineteen-year-old has been through so much trauma that he just becomes numbs and stops caring now. “Whatever,” he says and goes on. I just told the boys yesterday that God allows these situations into our lives to teach us to forgive others. I still stand by those words. We must forgive especially when it is the most difficult. I forgive Ken's siblings for filing the petition that excluded my children. I just do not understand and it hurts me because it hurts my children and I KNOW it would hurt their father.

Alex and Isaiah were asked to write a few words about their dad by relatives for their daddy's service. They really didn’t want to do so at first. It was too painful. However, they each wrote beautiful tributes to their father. Then, Isaiah asked to read a tribute to his father at his service. He was told he could not. We were willing to alter the tribute to the specifications of those in control (his siblings). Isaiah was told he would not be allowed to read his tribute. Then why bother asking him to write it? He angrily tells me, “I am his son.” Isaiah is the most forgiving little boy I know. I don’t want this situation to harden his heart and make him bitter. I feel my own heart becoming hard. I have to stop and pray for strength almost every hour all day long because these feelings on behalf of my children overwhelm me. At the same time, I understand that family members are angry that I divorced Isaiah’s father. It is easy to judge someone when you don't know the details and even easier to deify someone because your heart aches for them. But, what did my children do?

My brother passed away five years ago. I was devastated when I received the news. I miss him, but I am okay today. My father passed away when I was eleven-years-old. I never recovered completely from the loss of my father. I can’t imagine if relatives had chosen to exclude me from participating in my father’s service or had chosen to not list me as an heir as if I never existed. The ridiculous thing is that the only thing they would inherit is a one bedroom apartment full of junk. But, that junk belongs to my children. My children lost so much the day their daddy died. My heart is heavy not knowing what they will face tomorrow at their father’s service. If you plan to attend the service, please reach out to my children. They need to feel the support of those that care for them and recognize them as Ken Henderson’s children. He did.



It is enough that the children are dealing with their own grief. Alex is dealing with the recent surgery on his diabetic foot. Isaiah is dealing with seizures again and nightmares. Anyone that adds anything else to these babies will surely reap what they sow whether good or evil.

Saturday, January 3, 2015

A Tribute to My Dad

A Tribute to My Dad

By Isaiah Henderson

My dad was an honorable person. He loved me and my brother very much and would do anything for us. I loved him very much. To me his death does not make sense at all. When we arrived at his apartment, I saw a white body bag by the ambulance and my heart broke into a million little tiny pieces.  
I have but one wish and that wish is that I could have spent more time with him. I replay the night it happened in my mind over and over and over and over again thinking what I could have done to save his life. I keep getting the same answer. Nothing. This haunts me.  

There is one thing my dad taught me that I will never forget. He taught me how to have fun. He was the funniest person I have ever met. He would come to my house and say, “Okay, what do you have to drink?” I would always laugh. 

For those who did not my dad very well, he was a hardcore Christian. He put all of his faith in Lord. Right now he is with God in heaven rejoicing. He would want all of you to move on and rejoice for him, too. My dad was a great example of Christ.  He always was at church and always read the bible.  I know he did not plan on dying. I know this is hard for all of us, but we have to move on.



A Tribute to My Dad

By Alexander Ybarra

My dad meant a lot to me. I can’t remember my life without him because I was still in diapers when we met.  I wanted to be just like my dad. I used to even tell people that he was my biological dad and they believed me. It is easy to be a biological dad. Ken Henderson was my dad sent to me by God. He was always there for me if I needed help with financial situations, school, and anything else.

We used to go to Sea World when I was a little kid. I really wanted to go on this one water slide, but my mom couldn’t do it because of her polio. My dad grabbed a life preserver and took me. He couldn’t swim and was scared of water, but he loved me so much that he did it anyway. We would play racquetball, tennis, and disc golf together.  

My dad and I would have these long talks about God. One day I told him I didn’t understand something in the bible. He told me that God dumbs down His word so that it is more understandable to us. He said that if God shared everything with us without dumbing it down that our heads would explode. That day I told him that God wanted me to be a leader, but that I wasn’t sure. I asked him what he thought about it. He told me he thought I was letting myself be deceived. The next day I went back to helping in the youth. I never told dad, but that conversation really pushed my life in the right direction again.

My dad was trying to bring our family together again.  I got to see him almost every day and things had just started getting back to normal. Dad spent Christmas with us and planned to take me to fix my truck the day after he passed.  He was helping me to find a better job and further my education. Now that he is gone I have no one to help me.  I told my mom that I don’t like to write down my feelings. It is because I don’t know how to say how much I am hurting about losing my dad. This is so hard. I lost my biological father 2 years ago and now I lost my other dad. I can’t imagine what it will be like without my dad to protect and watch over me. I don’t know what to do withou  him. My mom just sits on the couch and cries all the time. My brother acts like everything is okay, but he writes very sad things about missing our dad. I could do that, but I know my dad is having a ball now. He wouldn’t want me to stop living. The truth is that I have never felt so much pain, but if I let myself feel it I know I won’t be able to survive.

When my daddy passed away, I was really mad. I went and punched my truck. I was mad at God even, but just for a second. Then I realized that dad was with God. My dad’s death just makes me want to follow God more so I can be with him again.

Thursday, January 1, 2015

Portrait of Divorce

I don’t think most people choose to place themselves in abusive situations.  I also do not think most parents intend to abuse their children. I am not making light of abuse of any kind. However, the response to abuse isn’t always so cut and dry. People often repeat what was done to them until they learn something else. Childhood abuse is like a cancer. It plants itself in the core of your soul following you no matter how fast you run.

Ken and I met when Alexander was three-years-old. We were inseparable from that day on. He would come over to my small apartment every day to have dinner with us, play with Alex, and do the bedtime routine of reading and prayer. He was the smartest man I had ever met and I was in constant awe of him. He would tell me, “I will love you always and forever” before he left each evening.

I remember him sitting me down one day to tell me that he planned to “court” me and eventually marry me. I was used to men always “trying something” and me having to block their unwanted advances. I never had to do that with Ken and this confused me.  I finally worked up the courage to ask Ken if he found me attractive.  He told me he was utilizing incredible restraint to honor me because it was what God wanted. Ken wanted his life to be a life of honor that would glorify God like no one I have ever met. It was genuine and sincere.

Our dates consisted of going to Mozarts where he would read these amazing poems to me and share his heart and plans for our future.  I had never known such unconditional love in my life. As the oldest child of very dysfunctional parents, I was used to being the caretaker.  When I was little there was no one to tuck me in, no parents at rehearsals or teacher conferences, and no emergency contact to call. I was the emergency contact even as a very little girl. Here was this man wanting to take care of me and be my forever emergency contact.

Our first Christmas together, he gave me 100 gifts. He would bring one in at a time, let me open it, and then bring in another one.  He was as giddy as a little boy to see the surprise on my face. However, it wasn’t about the gifts. It was about his intent in bringing me the gifts. He told me that he wanted to make sure I knew I was valued and adored.

We dated four years and then we were married.  He told Alex that he had married BOTH of us. Ken would invent these awesome games for us to play. One day he took golf clubs and tennis balls and took Alex and I to the tennis courts to play tennis hockey. On rainy days, we played chase and hide and seek in the house. He even resorted to putting on my pink robe, standing on my bed, and singing “I am too sexy for this robe” one day when Alexander was sad. All of us ended up on the floor laughing hysterically.

In 2004, God blessed us with Isaiah and our family was complete. Isaiah was the happiest baby. He would clap his little hands together and squeal. Ken loved both of his boys so very much.

A year into our marriage, Ken and I decided we wanted to foster children. We were given a large sibling group almost immediately.  We loved being foster parents and for a while it seemed we had found our calling. The need for foster parents was so great though. We were given more and more kids and their issues more and more significant.  At that time, the training provided was not adequate for the level of needs we were given. We did our best though. We had alarms on the doors to warn us if a child left their room. There were surveillance cameras all over the place. We had a six-year-old boy that tried to kill Alex. His brother started fires. Another little boy would slam his face into the furniture and threaten to accuse us of his bloody nose. Another smeared his feces on the walls and furniture and his own face. Ken and I stopped sleeping because we were always standing guard to make sure the foster children didn’t hurt themselves or someone else.

I started to have dreams of incidents I had experienced as a child. In the past, I knew I had been hurt as a little girl but I didn’t see my attacker’s face. In my dreams, I started to see glimpses of who this person was. I was too ashamed and embarrassed to tell Ken that a relative had hurt me so I said nothing. In my silence my shame grew. In turn, Ken was having flashbacks to things he experienced as a little boy. I knew about what had happened to him, but I didn’t know he was having difficulty with the memories.

We were each being triggered hearing the stories of awful abuse these little foster children endured. As our own trauma increased, we became less and less available to each other. Each of us responded in negative ways that hurt our children. Things began to decline in our life. It was slowly at first. So slowly that neither one of us recognized what was happening. However, our counselor recognized the signs of trauma in my oldest son.  The day the counselor told me the children and I needed to leave was one of the most awful days in my life. I had always been a passive little mouse. This day was no different. I did as the counselor told me. I know with my entire heart that Ken would have never left me. He would have done all he could to keep us together. My leaving shattered something in Ken and made it impossible for him to seek the help the counselor required. He began to implode. I didn’t realize this was happening to him at the time. I believed he just didn’t want to be married and was not willing to get help. The enemy lies.

It was so difficult to be a single mother with two chronically ill children.  I lacked the faith that God would see me through. Isaiah was having seizures and Alex was in and out of the hospital. I was drowning without help.  Hence I jumped into another marriage before my marriage to Ken was truly over. Ken started to pursue me then, but it was too late since I was married.  In time, he stopped coming over altogether. My youngest son couldn’t accept the divorce. He would tell me things like, “God didn’t sign the divorce.” He would tell me I needed to make things right.  I agree with him on both counts. It is impossible to have a successful marriage with anyone when you hold strong ties to someone else. The truth is that God never intended us to go from one marriage to another. In divorce, there is no way to make a clean break. A part of you will always stay with your spouse and a part of your spouse is always with you. I could sense Ken’s presence even after my marriage. I sensed his presence even when I told myself Ken had been wrong. Ken told me that I was always a part of him even though he forced himself to ignore it. He told me I was a part of him even when he tried to be angry over what I had done.

I tried to rebuild a new life, but the weight of my wrong choices was always present. I told my counselor that I know God wanted me to wait for Ken to get better. To give myself time to get better. We both suffered from PTSD as a result of our experiences as foster parents compounded with our respective childhood trauma. Each of us was experiencing so much personal pain that we couldn’t help the other. I busied myself with my work and my children and serving others. Ken busied himself with his work and his church and his side businesses.  I kept apologizing to Ken because I knew I had failed him and the children. He didn’t want me to know how poorly he was doing so he acted as if all was well and kept himself ridiculously busy.

I thought that his life was going well. It seemed that way from the outside looking in. Then one day I received an email from Ken. In the email he wished me well. He told me that he hoped my marriage would be blessed. He also told me that I was the only woman he had ever loved and even though he tried to become interested in other women that he simply was not able. He told me that I would be the only woman he would ever love.  He told me that he kept our wedding photographs and could not part with them.

When he learned that the boys and I were living alone, he started to come over again. It was as if we had never been apart.  We started to peel away at the issues we had simply ignored before.  It was then that I learned that Ken had not been okay this whole time.  He had found ways to stay busy, but his soul still pursued me. The last few weeks we talked about how difficult it would be for his family to accept me again. We talked about how I would need to make amends to them and to his friends. We knew the children were happy to have him back in their lives more, but that this was confusing for them as well. He spoke of the things that had gone wrong the last two years of our marriage. He thought we should get counseling. He told me that he planned to apologize to Alex. He confessed to Isaiah that he made many mistakes and that he and I were equally to blame. We were both owning up to our many mistakes before God and before our children. Earlier this week, when Ken learned I was trying to sell things to pay for the children’s needs he told me I wasn’t alone. He put gas in our vehicles and helped me with groceries. He told Alexander he would give him money to fix his car and took him to the mechanic to start the process. We were going to take Isaiah shopping for clothes this week. He wanted to right his wrongs and made plans with the kids to start spending more time with them. He was going to give me a chance to right my wrongs. He was going to right his wrongs with our kids. It seemed like our life was going to be back on track again.

Ken asked me if I wanted to help him work out and we went and purchased workout clothes for him. As we walked to Alex’s truck, he realized he had left his cell phone in his apartment. Isaiah and I encouraged him to go get it. He answered, “I don’t need it. You guys are already with me.” 

The children and I were taking this winter break time to help him clean through the years of ignoring the maintenance of his home.  I learned that when our inner pain is so great we are sometimes not able to deal with household chores. I, myself, have struggled with using food or apathy to numb my own hurt. This is the legacy of divorce. It is a painful void that doesn’t go away in us as adults and in our children.

On Christmas Eve, Ken told me that he was thankful to have the opportunity to discuss all that had happened. He and I agreed that neither of us wanted to hurt any more people. We both wanted so much to right our wrongs and find restoration for our relationship and our children. It is so difficult to clean up a mess like the one we created. He was no longer angry with me, but the hurt was going to take time to heal. We each took back words said out of pain. Truly, it would have been so much easier had we remained married and waited it out.  As Isaiah has pointed out to me, “This would have been what God wanted.”

Alexander told me today that he is sad that he didn’t get to spend more time with his dad. He told me that he could tell things were about to go back to the way they were before we became foster parents. He had been happy about that.  Now he just feels sad that it didn’t happen that way. Alex also told me that the last few weeks were like we were a family again. I know that is what Ken and I hoped for.

In the last couple of years, I have tried to warn friends contemplating divorce. I know they have resented my passion at times. I hope they know I never meant any disrespect towards them.  It was my attempt to throw them a life preserver. Oh, how I wish I would have known the things we would endure as a result of our divorce and my remarriage. I wish every person contemplating divorce would stop for a moment and consider the cost to your own soul, your spouse, and the cost to your children.

My heart is heavy tonight. I wonder what would have happened had I insisted he spend New Year’s with us. He had plans with family. He offered to cancel them to be with us, but I encouraged him to keep his plans. We made plans to meet up today. Yet, the call I received from him today came earlier than I expected. It was a call letting me know that he wasn’t well and needed me to come to his apartment. “Come soon…” he said barely able to speak.  Alex drove faster than was legally permissible and it seemed too slow for me. I knew that if the police had stopped us, I would have told him to continue. Alex would later tell me that he had no plans to stop for anyone including the police. And even though we made it there in miraculously record time, we didn’t make it in time. The children would later tell me they saw the body bag outside when we pulled in. I didn’t notice the bag as my focus was on making it past the blocked front door.

The officer asked me if Ken had friends or family in the area. He had many friends including several living in the same complex. As the officer spoke to the judge to determine next of kin, the officer told the judge that out of all the people Ken could have called he chose to call me. He placed his arm around my shoulder and said it is obvious you were the most important person to him. He meant to offer me comfort, but the knowledge cut like a knife. Those words still echo in my head and in my soul. If Ken had called one of his neighbors perhaps he would have received help in time. If he had not taken the time to call me and had unlocked the door instead, perhaps the EMS team would have been able to reach him sooner.  I am beyond sad because today I lost not only the father of my children, but the man who taught me unconditional love. The man who shared my youth and most of my adult life. Ken and I were just shells of the people we had been when we were together those first years. The hardships of our life caused us to limp emotionally. My heart aches knowing I can’t pick up the phone and call him. But, my hurt is a selfish and self-serving hurt. Alexander said it best to me today, “I cried because he was my father, but now I have to be happy because he went to be with the God he served. His death just makes me want to follow God more.”

I am still crying and not ready to let Ken go. When I can get past the agony I feel inside, I have moments of gratitude. I thank God that my children had winter break with their father. I thank the Heavenly Father for His grace that this sweet man is no longer wounded in anyway. He has been restored in every possible way. God, restore the boys and I, too.


Friday, August 15, 2014

I am Stronger

When I was a teenager, I really thought there was no better place to be than in church. It seemed like the safest place on the planet to me. I was at church anytime the doors were open. Some days, I would walk down the street and just sit in the pews of the empty building breathing in deeply. I guess a part of me believed I would somehow inhale a part of God and remove all things bad every time I exhaled. I was blessed that most of the Christians that entered my life were significant positive examples. If you had told me then that I would look at the church through suspicious eyes now I would have said that could never happen.

You really can’t imagine how you will feel or respond to certain situations until you find yourself walking hand in hand with them. I am still amazed how I ended up in this current situation. I truly saw myself doing something else when I accepted Jesus at age 15. I envisioned entering the mission field and devoting myself to him. Instead of sitting here revisiting the last few months and asking God to help me make sense of things.

I see him walking the halls of the church joking and cutting up with leaders, pastors,and church members. I know some of them know the things he has done to me. It isn’t that I want to seek revenge or even justice. I no longer feel angry for the things that he did. Sometimes I feel afraid and have a sense of evil foreboding thinking something awful is about to happen even when all seems calm. But, I feel mainly indifferent towards him and empty towards most things.There is an barrenness in my soul at times that is incomprehensible. Something pure, kind, and hopeful once lived there, but he took it away. I grieve for what was taken from me.

He did so much to me and allowed so much to be done. The “love” he gave that left me with physical wounds that never heal completely and an emotional wound that is hard to ignore. The sprained limb, countless bruises, and fractured finger seem irrelevant now.  I know most people do not believe my story.  I am not sure why I would even care. It isn’t so much what people think or whom they believe, but how their doubt makes me feel. It makes me feel like I am not worthy to defend.I am two-years-old all over again being left alone with a schizophrenic relative.  There was evidence of what happened to me then as well. Physical evidence which was ignored so easily. I still am not completely sure why I wasn’t worthy enough to defend then….. or now.  Ah, but I digress, I don’t hate him. I don’t think he knows any better for whatever reason. I truly think he believes his own words when he says “it wasn’t that bad” or that he didn’t know he was hurting me.  I think someone can become so addicted to brutality that it becomes second-nature much the way my gluttony used to come so easily to me. We are all covered in our own variation of mud.

I suppose what causes me the most heartache is the reaction from those who would seem to know better. Someone actually told me, “Everyone deserves a second chance..”  Really? Does a man that repeatedly assaults his wife for almost five years in ways that are unimaginable to describe deserve another chance? It seems to me that our society has become so tolerant that we have thrown wisdom and good judgment out the door. Another leader told me that the church doesn’t take sides but they are praying for me.  Why doesn’t the church take sides?  This isn't even biblical. I often remember Jesus knocking over the merchant’s tables when they were selling their goods in a house of worship.What would Jesus do if I told him I had been repeatedly assaulted emotionally, physically, and intimately for almost five years? Would he take sides?   The ironic thing is that I spent over two years taking one side. His. I was certain I could become all he wanted and needed and demanded and this would fix the situation. It did not. Depravity cannot be cured through my submission. It takes a supernatural act of God.

Still, I don’t hold anything against the church. I will continue to attend week after week. I could be speaking of any church mind you. My story is heard across the country coming from men and women that have gone to their spiritual leaders in various denominations for help and met with unbelievable apathy, indifference, or even angst.

I never wanted people to know the intimate details of my wounded life. Only a very desperate person would invite the judgments of other people for the sake of a potential rescue that never came. Ironically, the rescue came in the form of a realization that most of us really are as alone as we feel and stronger than we could ever imagine. I am stronger than I could have ever imagined.  I am thankful for knowing I am strong. I am thankful for being able to tell my story and not be ashamed. I am thankful that God showed me how to stop the abuse when no one else wanted to help me. 

Saturday, August 9, 2014

Hosea

Pursuing an Unfaithful Wife

Hosea 2:14–23 is one of the most tender and most beautiful love songs in the Bible. It is sung by God to his unfaithful wife, Israel. But before we look at it, skip over to chapter 3. Here we see Hosea and Gomer for the last time. She has run off and lives now with a paramour, a "significant other." So Hosea is free, right? Now he can get a divorce. She has ended the marriage once and for all. She has another man. Hosea is free. Right? Wrong! God would not give up on Israel, and he aims for Hosea to symbolize his undying love to his wife of harlotry. Verse 1: "The Lord said to me, 'Go again and love a woman who is beloved of a paramour and is an adulteress; even as the Lord loves the people of Israel, though they turn to other gods and love cakes of raisins.' So I bought her for fifteen shekels of silver and a homer and a lethech of barley." When you think a moment on what God asked Hosea to do here, you get a glimpse into what God's love for us in our wretchedness is like.
I am thankful that God took pity on me and rescued me despite my unfaithfulness. 

By John Piper. Taken from: http://www.desiringgod.org/sermons/call-me-husband-not-baal

Saturday, July 26, 2014

Fear

For most of my life, I lived with fear as my constant companion. Fear kept me from getting hurt. Growing up with a disabling condition, I was constantly afraid of hurting myself. I have never climbed a tree. I do not know how to ride a bicycle. I avoid things that might be physically challenging because I will invariably end up hurt.  I have also been afraid of people at times. I try to play it safe. It can be very discouraging when the rest of the world seems to be taking chances and pushing themselves to new levels.  I would watch from the sidelines where it seemed safer.

A while ago, God started to show me that I was created to live a life of risk. I am not talking about the kind of risk my son Alex takes as a Parkour athlete. No, I don’t plan to leap from buildings or scale ten foot walls. My form of risk involves no longer allowing myself to be a doormat to cruel or insensitive people. My form of risk means no longer being constantly afraid of getting hurt.

Walking away from fear means trusting in God and taking one leap of faith after another. Faith gives you courage. Courage to do what is right instead of hiding.

This summer took me to even greater steps in my faith. My son, Isaiah, and I went to camp together. This meant I had to carry my own suitcase.  People with polio often struggle to do simple things like carrying a suitcase! I also slept on the TOP BUNK, people. The TOP BUNK! Sleeping wasn't a big deal, but getting up to the second level was a huge deal for me.  I spent the week with a group of beautiful giggly girls and our wonderful children’s pastor. Normally, I would need to take several breaks to keep up that pace and take steroids and painkillers. There are few breaks at kids’ camp and I didn't take steroids and painkillers.  Nevertheless, I not only survived the experience; I thrived from the experience.  I came back changed and determined to live by faith and not fear.

Fear helped me survive a difficult childhood. Fear kept me from making my polio worse through injury.  However, fear has hurt me more than helped me. Fear can paralyze you, enslave you, and keep you from enjoying your life.  Fear is unreasonable and all-consuming.

This weekend was another huge leap of faith. I put on a pair of roller skates and actually got out on the rink and skated. Okay, so I had to use a giant, adult-sized walker, but I didn't let fear keep me from trying.

I think it is time for fear and I to part ways. I will no longer be afraid of people.   I will no longer be afraid of the opinions of people. I will no longer be afraid to protect myself and my children. I will no longer fear making my polio worse.  Fear, I don’t need you any longer. God has given me faith to replace you. Good bye.


Friday, July 25, 2014

Prickly Pears

I was at the grocery store earlier this week and saw prickly pears on sale. It reminded me of a story my mother used to tell me when I was a little girl. She would share with me about going hiking with her mother, my grandmother. She said they'd go to the top of the "serro" where all the cacti grew. At the top, they would find a place to rest. Her mother would cut off prickly pears from the cactus. My mother said she would peel away the skin from the pears revealing wonderfully delicious fruit. Mother claimed the fruit was so good and these little adventures were a highlight of her childhood.

I eagerly purchased four of the prickly pears and took them home for my family to enjoy. I carefully washed the fruit, peeled them, and sliced them up for my family.


What my dear mother failed to share with me is that the "wonderful" little fruits are full of invisible little splinters! I have spent the day pulling hairlike daggers from my hands!! The moral of the story? Stick to watermelon.

Ridiculously Beautiful

Someone told me today,  "You are ridiculously beautiful." That is all for today.


Without a Vision


I tend to suffer from bloggerhea when my mind is a clutter-filled mess. Blogging helps me make sense of my prayers and thought life. It helps me sort through all the piles of laundry in the many rooms of my heart, mind, and soul. It helps me discard the loads of dirty laundry and only keep what is starchy clean.

I have a gift that I am able to compartmentalize those things that are worrisome so that I can get essential things done.  Too much to think about! As I started to pray earlier today, God reminded me about what Pastor Champion said on Sunday. In addition to his usual comments about grace and no condemnation, he also talked about needing a vision and a purpose. I agree that if I just wander about each day without a specific vision I am just going to become depressed. What do I do as I wait for God to make the truth clear to me?

I focus on leading my little family. I follow God.  I focus on work. I focus on discipleship in the home. I look for ways to weed secular influence from the lives of my children. I look for what God may be saying to me. I look for his reminders all around me and follow His lead.

I don't have to look at each experience as yet another failure. I can remember Pastor Champion's words;

No condemnation No guilt Jesus came to take our tears away. It is all about the grace. Jesus the door to forgiveness.

There is no reason to come undone. It is well with my soul.

Sunday, June 29, 2014

I Love...

I love the sound of a wicked storm on a summer's night. 
I love resilient flowers standing tall in their vase.
I love the smell of Patchouli incense burning spicy and strong.
I love suspenseful movies and butter drenched popcorn.
I love to praise God in the car.
I love rain and the ocean. 
I love sipping coffee while perusing book stores.
I love perfumed body lotions.
I love glittery painted toe nails that shine in the sun.
I love old books.
I love all shades of purple.
I love serving and reaching out to people. 
I love making new memories.
I love creamy coffee and smooth chocolate.
I love telling other people about what God has done for me. 
I love God's grace and mercy.
I love spinning around and around under the Zilker Park "Tree of Lights".
I love Zorbas. 
I love walking taking time to feed the pigeons.
I love a good picnic after a morning of aggressive hiking.
I love to write.
I love Guinea pigs when they "wee" in the middle of the night.
I love "fun" days without purpose. 
I love friends that tell me I'm wrong in secret, but come to my rescue out in the open.
I love buying things for those I love.
I love running long and hard to loud and aggressive music.
I love deep and meaningful conversations.
I love garage sales on early Saturday mornings.
I love people that allow me to behave as if I'm still ten-years-old.
I love people that behave as if their ten-years-old with me even more.
I love to skip.
I love running through sprinklers.
I love taking dancing breaks throughout my day just because I hear a good song. 
I love my family.
I love simple.
I love piñatas.
I love restaurants with patio seating.
I love the Opera.
I love trampolines on a star-filled night.
I love finding sparkly little girl shoes in my size.
I love feeling safe.
I love freedom and being able to be, live, love, without worrying that people don't approve.
I love being loved and accepted by those who truly count.
I love Mozart's on a warm, breezy day with a good book. 
I love second chances and restoration.
I love that God's purpose is fulfilled despite my stupid mistakes.
I love the story of Hosea... unbroken love from a broken heart. A story about a man that wouldn't let go. Jesus never lets go.






Thursday, June 26, 2014

Trust

Trust means I know that person will stand up for me, not degrade me, and not be deceptive in ways that aren't always about fidelity.

Wednesday, June 25, 2014

Why Are We So Poor?


Isaiah asked me today,"Why are we always poor?" I had just gotten off the phone pleading with the Medtronic rep to send my kid diabetic equipment that he needs to keep living. I have paid almost $900 in the last four months not including the $300 I had to give them today. And I STILL have a $600 balance. No joke! This is just for the medical equipment and doesn't include our doctors' copays and cost of medication. This also doesn't include the dozens and dozens of hospital bills and ancillary service bills piled on the table. Lets see diabetes (pancreatic failure), early onset osteoporosis, thyroid failure, recurrent MRSA and today we were told Alex has "thickening" in arteries. I know God has a purpose in all of this, I can see the long term "its all going to be okay." But, just for a little while I really need a break from the stress of my boys' medical bills from the last ten years!

Tuesday, June 10, 2014

My Bedroom is on the First Floor

My day started in a rush as the boys and I struggled to get to the YMCA on time. I committed to taking two classes today which I was certain I would have no trouble completing. However, it took me only 15 minutes of attempted squats and bending at the knee instead of leaping into the air to realize I was in over my head. I would not be attending the second class! I normally do not care what people think about my physical ability or lack of physical ability. For some reason, today all I could think about was the arrogance and stupidity in words spoken to me about my illness. A few months ago, a well-intentioned pastor told me that thinking about my illness prevents me from moving past it. I almost sighed out loud as I picked up the barbell and raised it over my head.  I noticed the man in front of me was lifting twice as much weight with one prosthetic leg.  I don’t think anyone would ever dare tell him thinking about his injury prevents him from moving past it. He has to think about it every time he goes up a flight of stairs, tries a new exercise routine, and when the ache in his leg rubbing into the prostheses reminds him that he isn't allowed to attempt the second class as we had planned.

I have lived with the foolishness of man diagnosing my medical condition and my mental health when I have to make allowances for my medical condition. I am questioned, because unlike the man with one leg, or the woman who is in a wheelchair, I do not have the appearance of someone with a disability. Still, I have a very real and crippling disability. Please do not get me wrong. It isn't that I do not have evidence. The evidence is in the crutches, braces, and cane that are stored away. The evidence is in the referral for a special brace to keep my “drop foot” from dropping.  The evidence is in how many times a week I fall from my legs deciding they have had enough for the day.  I don’t fault this pastor man for his lack of compassion towards me. Ignorance and deficits in humanity have no gender or denomination.

A few years ago, I went to see a new neurologist hoping he could provide something other than steroids and narcotics to treat me. He thought I was faking the reflex, mobility, and strength test. He told me he would have to do an EMG to confirm my polio diagnosis.  This was a nice way of saying he was going to place hundreds of needles into my legs, buttocks, and spine to make sure I was not a liar. At the end of the test, he concurs that the damage to my body is indicative with the diagnosis of polio and latent post-polio syndrome. Wow, I never would have guessed that, doctor doesn't know a thing about polio.  He wanted to do my arms next because now all of a sudden he admitted finding weakness and carpal tunnel symptoms in my arms, wrists, and hands.  I refused any further needles to my body. His prognosis? He tells me I need to avoid all exercise including walking for exercise without the help of a physical therapist. He gives me a referral for medical equipment, high doses of Prednisone (surprise), and Demerol (yummo!).   “I think we need to look into assistive devices.” At this point, I am starting to feel dizzy at the sound of braces again and then a wheelchair. My legs are still shaking from the trauma of the EEG and PPS fatigue has started to settle in.  I take the handful of prescriptions and referrals tossing them into the car already knowing I do not plan to do anything he suggested. I made the mistake of bringing my mother with me so I wouldn't have to endure this alone. She has slumped herself into the passenger side wailing, “Why does this always have to happen to me!!” So reminiscent of my childhood.  I am trying to comfort and reassure HER that everything will be okay. Car started. Legs still shaking.  Wheelchair echoing in my head. Surprisingly, I lost control of the car and ran into a light pole a block away from the clinic and totaled our van.  I attempted to explain to the police officer why I am slurring my words.  My mother is crying louder than before. Thankfully, my best friend Lizzy, arrives in her van and explains my situation before I have to take a sobriety test.  Ah, a witness to confirm that I am not drunk nor am I crazy. Thankfully, my boys were with her when I stopped ignoring my illness and ran off the road.

The neurologist before this one told me my high prolactin levels meant I had thyroid cancer.  I believed him. It was a very hard three months. Later, I learned polio causes high prolactin levels. And another doctor wanted to remove part of my intestine because of my intestinal problems.  Intestinal problems are part of living with post-polio syndrome.  I have learned that most neurologists or other doctors  know nothing about polio. In fact, I went to an ortho once who spent an hour taking notes, x-rays, and other tests. I really thought she was going to help me.  She told me exercise was not advisable, suggested shots I could not afford, and then asked me if she could interview me because she had never met someone with polio. I almost offered to give her my autograph. The only doctor I see now is an amazing family practice doctor who told me my intestine didn't need to be removed because polio causes them to kink and removal will make my problem much worse.  He tells me to exercise in moderation and rest when I am tired.  He said to avoid the devices as long as I can and to be willing to see a neurologist when it becomes necessary.  Freaking genius!!

I continue to exercise, dance, and pull out a cane more often than I care to admit. Sometimes the pain is so unbearable that I get lost coming home from work.  My youngest son has to remind me which way is home just a few blocks away from his school/my work.  It isn't easy for me to do things after work at times.  The days I choose to go to the YMCA, after school event,  or other activity normally requires me to sit in the recliner for hours after or makes it certain that I will be hurting for days to come. I am sure people think I am moody. No, I am not moody.  I just hurt.  People with post-polio syndrome will sometimes slur their words, stutter, misuse words, or even appear drunk because of pain and fatigue.  At one time, I didn't tell anyone about my illness.  It was almost as if I had an STD that needed to be hidden. Be ashamed.  But then I got tired of being made fun of when I had trouble speaking or being called “clumsy” because I fell all the time. Amazingly enough, there are people that still make fun of me when I use the wrong word or stumble over invisible obstacles even after they know about my illness.  I have learned to overlook their adolescent behavior realizing that saying polio nowadays is like saying Bubonic Plague.  You have no idea how much pain I am in at the moment I misuse a word.  Imagine a “Charlie Horse” that sticks and you can’t work it out.  PPS has been described as having the flu and being pregnant, while trying to run a marathon. No, I am not exaggerating. The truth is I often make things seem not as bad as they are.  I am blessed. Most people with scar tissue in their lungs have trouble breathing. I only have trouble breathing sometimes.  You should read the stories of other people with my same illness. They are in wheelchairs and on disability. I can work.  Even when my illness has put me into a weak and debilitated condition, I still normally do the work of several employees. I am one of the first people to arrive at work and usually there most weekends. I have always been that kind of employee, student, and friend.  I have never received a negative performance review in my life. Considering my medical condition, this is a miracle. I will work as hard as I can and help as many as I can for as long as I can.  Yes, I am bragging and I have earned the right to brag. But I brag not in myself, but in the grace that God has given to me.

I probably should just try to move past my polio as was once suggested to me.  The day I became ill I tried to do just that very thing. It was warm and sunny; however, I recall waking up feeling very cold. I couldn't get warm enough!  I tried to find someone to help me get warm. My grandmother was busy in the kitchen as usual.  I tried to get her attention by pulling on the apron she always wore. I stood leaning against her for a moment taking in the scent of corn masa and old lady perfume.  I could feel the warmth coming from the stove as she flipped the corn tortillas on the heavy black comal.  Soon she stepped away from me to tend to the pot of beans on the second stove behind her. Her absence left me feeling cold again. Traditional homes in Mexico have a large uncovered patio at the center. My grandparent’s home had three stories with a center staircase open to the sky as well. I could feel the sunlight on my face as I exited the kitchen door. I stood at the bottom of the stairs starting to feel not so cold. As I climbed each step, I could feel the sunlight warmer on my skin. One, two, three, fall,  four, fall, and five steps. Soon, I found myself at the top of the first flight of steps. The towels my grandmother had hung across the balcony that morning were already dry. They swung back and forth with the breeze’s encouragement. I found a place to rest underneath them and closed my eyes. This is the first moment of real pain that I can remember. I felt as if my entire body was scourging with the fire pouring into my legs. Ah, but at least I was no longer cold. I am not sure how long I rested on that concrete floor. I only remember that when I tried to get up, I fell back down to the floor. I tried a few more times and each time my legs seemed to become heavier. I finally gave up.  When I heard my mother’s voice calling my name, I was unable to voice a response. I felt as if I had swallowed sand down my throat with some particles drifting into my lungs, and the rest settling into my legs.

The physicians in Mexico told my parents I had muscular dystrophy. My father said that was,  “Chicken Shit!” in addition to a few other colorful expletives. As a World War II veteran, he lacked sensitivity training 101.  Mama was almost nine-months-pregnant with my little sister when my father packed us up to come back to the states. The doctors at Bergstrom Air Force Base told my parents I had suffered from paralytic polio with paralysis to my legs. They were told I would probably not walk again. I did walk, though. In elementary school, the Bergstrom Air Force Base doctors gave us a medical note so I would not have to attend physical education. This meant that I went to the gym with my classmates, but was expected to just sit and watch. I can still remember grabbing the jump rope and attempting to jump with assistive devices.  Jump, fall, jump, fall, fall, fall. By the fifth grade, I no longer gave the medical excuse to the school. I refused to take assistive devices to school. I fell all the time. I fell more often than I walked. Throwing away the doctors’ notes meant that I no longer had the protection of being medically exempt as well. I was expected to attempt all physical activity just like everyone else. This was preferable, at least in my opinion, to being exempt from being noticed.

I saw the neurologists at Bergstrom Air Force Base all the time at first. When I was almost twelve, my father died, making the doctors’ visits less and less. However, one of those BAFB doctors recognized the neglect in my life and referred me to the agency that was called, “the Crippled Children’s Services”.  After more needles being stabbed into my legs, butt, and back; the doctors told us that my legs continued to deteriorate. I vividly remember those two neurologists scolding my mother harshly for the severity of my feet and toe deformity. I don’t remember all the details after that except words like poor blood circulation, surgery, braces, and wheel chair were said…. again.

My life has been spent taking off assistive devices, putting them back on, hiding the cane, pulling it back out, refusing the steroids and then taking them so I can walk. Pretending I don’t have polio and then finally realizing my polio is no different than any other illness. There is no shame. Even when people like pastor have no idea what you were talking about  tell me I am choosing to hold on to polio.  I am not refusing to move past my polio. I move past it every single day of my life.  I encourage groups of people at my job to do the Insanity workout during summer or join me at the YMCA.  I readily and happily move past it beyond logic and medical advice. Then there are days like today, when the cramping of both my legs and the trembling and weakness, refuse to let me move past it. Tonight, I am reclined in this chair with a glass of wine. Four ounces of wine seems like a better choice to me than Prednisone and Demerol.  As a hardcore Christian who doesn't want to offend anyone, resorting to the occasional glass of wine was difficult. But, it helps most of the time.  Judge me if it makes you feel holy.  Holy is my sweet co-worker with the disabling arthritic condition who stays late and comes in early and always has a smile on her face. Holy is coming in to work on the weekends to catch up other people's work when your job is caught up. Holy is the man with a lung condition who sees it as his mission to encourage others (and he does!). Holy is serving.  I pray you never have to walk in my shoes. Today, I had to tell Isaiah that we couldn't go swimming and I couldn't walk down the street with him to see if his friend was home. Days like today mean he and I are both stuck at home.  

So, I take a deep breath.  I resist the urge to become bitter over the prejudices and cruelty of others who think they know my situation. It is hard. Some days you just want to punch people in the face. Then I recall I should be in a wheelchair.  I think of the man without a leg. I think of my own son whose life is dependent on the little insulin pump on his abdomen. I think of the little boy with leukemia and my co-worker with cystic fibrosis.  My situation isn't so bad.  I thank God for my legs. I thank God that I am still able to exercise most days. I am able to chase Isaiah through the house and over his bed.  I may not be able to make it up the stairs very often, but that is why my bedroom is on the first floor. 

Saturday, June 7, 2014

Faithmore



What do you fear?
Dark recesses of your mind...
What haunts your deepest thoughts?
Locked doors too panicked to open....
What consumes your sleepless nights?
Loud silence...
What holds you captive?
Self-fortresses....
What lives in the rooms of your heart?
UnSurrendered..
What seeds of doubt threaten your peace?
Faithless...
Are you lonely?
Sequestered...
What if those around you discovered you aren't as together as you seem?
Exposed...

What if none of it mattered?
Unshackled.....
What if you could walk in freedom to love and serve?
Delivered

What if only you had the power to determine your worth?
God loves me....

Fearless... fear LESS.... faithmore..... faith MORE.....

"He whom the son sets free, is free indeed." John 8:36

Saving Isaiah



My oldest son, Alexander Ybarra, wrote this essay for school. He chose to write about his little brother Isaiah.

Author: Alex Ybarra                                        Date: May 26, 2014

Title:   Isaiah

I always wanted a little brother. I was excited when my parents became foster parents. One day, Miss Martha our caseworker, called us. She told us that they had a little baby that needed a home. It was hard for my mother to take care of babies because she was sick and could not carry them. I promised I would carry him. I wanted him so Miss Martha brought him to us. I made a welcome sign and hung it up for him. I hugged him. He was very small and couldn’t stop drooling. I patted his head and he wanted to go with me. He was cute. Miss Martha said everyone called him “Chachi”.

The doctor said that my little brother was slow. He said that Isaiah would not learn to walk until he was much older. He also told us that he would not learn to talk on time and have problems with social things. He said my brother might have lots of other problems later. “Early brain damage is usually generalized rather than specific, with increased specificity of abnormalities revealed as development progresses.” (CDC)  When my mom said that my little brother’s biological mom had done stupid things while pregnant with my little brother, I was very angry.  I was angrier when I later found out that 10 percent of women used alcohol when they were pregnant. (Wattendorf and Muenke 2005).

My little brother looked scared for the first week with us.  My mom carried him in one of those baby backpack things, but Isaiah would reach for me. I got him to laugh and soon he looked like he felt at home. I made it my personal mission to teach him to walk and talk and grow up like a normal kid. I think I decided that Isaiah was my own child. I even told my friends that Isaiah was mine. They believed me.

I started with walking because he had already learned to crawl. When I was watching him crawl, I noticed he did something that resembled the moon walk. I showed my mom. When she saw it, she got excited and laughed. Isaiah got excited and started to clap. He clapped all the time. So, three months later, I noticed he would crawl to the wall and use it to stand up. I used this to teach him to walk. I called him to come to me. He would go to the nearest wall and he would stand up and try to run to me. He took 3 steps and fell. He would try to crawl to me, but I would tell him no. He did this again and again. One day he tried to crawl to me and I loudly said no to him. He really wanted to be with me so he finally walked.

Now that I had gotten walking out of the way it was time to work on talking. Every once and a while, I would ask him to say some words like candy, dog, and other small words but they would always come out as gurgled sounds. This meant he wanted to talk and was trying but couldn’t, so I began sounding words out with him. My little brother’s first word was Alex ironically. Well, he couldn’t say my name so he just said the word Ali. Then my mother read us a book about someone named “Alibaba”.  Isaiah called me “Alibaba” after that.  My mother and Isaiah still call me “Alibaba” sometimes. 

As Isaiah has grown older, we have learned that kids with FAS sometimes have heart problems and seizures. (Nguyen 2008). Isaiah has both of these problems. I also found out that his asthma could also be because of the FAS. (FAS 2014). He also can get angry easily. It is hard when he accuses my mom and me of things we haven’t done. I sometimes forget that he just doesn’t get it. When I mess up, I mostly know I have done something wrong. Kids with FAS do not understand right from wrong most of the time.

The list below shows some of the problems my brother has already had. 
Attention deficit disorders - ADD/ADHD
Mild to severe vision problems
Higher than normal to dangerously high pain tolerance
Dental abnormalities
Behavioral problems
Extreme impulsiveness
Asthma
Poor judgment
Complex seizure disorder
Developmental speech and language disorder
Developmental delay
Sleep disorder
Autistic traits
Night terrors
Heart defects
Central auditory processing disorder
Reactive outbursts
Learning disabilities


It is kind of ridiculous that doctors have told us he has all these problems, but he is on the honor roll. I will keep my promise to Isaiah and keep helping him to do better than the doctor said he could.